Catching Up (Right)
So I saw my Neuro Doc the other day about the results of the LP (spinal tap),
Turns out (why didn't I know THIS was coming?) everything 'looks normal'.
BUT, she said, my pressure is slightly elevated,
Okay...intracranial pressure is elevated. Something about a 'pseudotumor' (which I know by now means it's not really a 'tumor'). And prescribed me water pills (Lasix) to try and decrease the pressure.
No layman's explanation, no plan of attack...just another 'let's give you something to RELIEVE THE SYMPTOMS' instead of 'let's get to the bottom of this and find out what's causing the problem and fix THAT'...
Kat's right (my sis, who's also a Nurse): I place too much hope for 'magic' in the hands of my docs...
The headache has become a permanent tenant in my skull, although a little quiter now and then. It makes odd (and disturbing) noises in the back of my head (creaks, crackles, crunching, ticking). And the back of my head hurts, too, above and at my neck, making it hard to turn my head well (and more noises)...
I feel like I'm under water, right at that point where you know you HAVE to go up for air or ELSE. Full, tight like a watermelon, and heavy as one, too.
It's affected my hearing in much the same way: feel like I'm hearing in a 'muffled' way...
Know this isn't really 'possible', but when I touch my head (sides, top, back) it feels 'squishy' where I press with my fingertips. I've had a slight fever off and on since this all started over a month ago...
AND, strange things happening to my hands: my fingers are aching, swollen and -- PEELING! -- just above the cuticles... It's as if I woke up two mornings ago with this, and it's worse this morning (more fingers affected).
It's 4:30am (well, 4:50 now) on a Saturday, and I shouldn't be up at this hour, but Kat's bringing the girls over for the day (and tonight) on her way to work this morning, so I wanted to be up and about an hour or so before they get here.
I need my 'coffee time', that first hour or so of being between night and day (almost said between 'sleep' and awake' -- ha! That's ALL NIGHT...).
Nash has his first week of summer vacation under his belt now. He'll be in 7th grade this Fall... becoming such a young man. He's a handful, buthe makes me proud.
Too tired to do my pain level chart thingy this morning... outside of my back, hips, elbows and head hurting (as usual), and with some weakness in my legs, today might be one of my 'good' days...
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